Residing With CF: From Day Care to Excessive Faculty
For youngsters with cystic fibrosis, the primary day of elementary, center, and highschool not solely marks the transition towards larger independence, but in addition larger duty in managing their illness.
To assist information you and your little one by way of these transitions, individuals with CF and their households share experiences and recommendation on what to anticipate and the way they’ve adjusted to challenges of rising up with CF.
The “Faculty Transitions for Individuals with CF and Their Households” segments in our “Pathways to Lifelong Well being” video sequence additionally embody views from CF care staff members and faculty personnel. Subjects mentioned embody beginning day care, partnering along with your kid’s college, managing remedies with after-school actions, college transitions, studying independence, and transitioning from pediatric to grownup care.
An Introduction to Residing With CF
An introduction to the video sequence on college transitions, from day care during highschool.
Going to Day Care
4 households share their experiences about sending their little one to day care and discuss germs, an infection prevention, and educating day care workers.
Partnering With Your Faculty
Households, college school, and care staff members discuss partnering with college workers to accommodate the precise wants of scholars with CF, together with 504 plans.
Actions
A dialogue on balancing remedies with after-school and summer time actions, with views from households and CF care suppliers.
Faculty Transitions
Find out about how you can handle college transitions, together with transitioning from elementary to center and center to highschool, how you can deal with remedy at college, and faculty work whereas within the hospital.
Friendship and Studying Independence
A dialogue on the significance of being open and trustworthy with associates about CF, transferring towards larger independence, and dividing up duties of care.
Transition From Pediatric to Grownup Care
Households and social staff discuss managing the transition from pediatric to grownup care and the significance of asking questions.
Rejoice Your Kid’s Transitions
Steerage for fogeys on when to step again as their little one learns how you can dwell an lively life with college and CF.
Hope for the Way forward for CF
A message from Robert J. Beall, PhD, former president and CEO of the Cystic Fibrosis Basis, on how the journey of dwelling with CF continues to evolve, now marked by transitions into maturity.
