On a damp, late afternoon in November, Edith sits laughing loudly and bantering with two older members of her staff throughout a lull between heavy rain showers. They watch as youthful workers members dodge puddles and sweat by a day by day aerobics routine within the muddy courtyard.
As energetic pop music blares throughout the compound made up of three single- and double-storey buildings, seven-year-old Diego, who has cerebral palsy, heads up a concrete ramp in direction of a remedy room. His wrists twisted, he crawls ahead slowly till Edith spots him.
“Diego, my boy!” the 49-year-old calls out with a large grin.
She runs over to him, her unfastened gown billowing as she scoops him up and swings him shortly onto her hip. He offers her a excessive 5, and the 2 snigger earlier than turning their consideration to the exercise.
The heat and affection between Edith and her workers and the youngsters on the orphanage make the place really feel prefer it belongs to a really giant household.
Edith’s personal journey as a incapacity rights determine in Uganda started in 2000 with the beginning of her first baby, Derrick, in Jinja.
When Derrick was two days previous, he turned yellow and cried excessively. So Edith and her husband, Richard, took him to a hospital the place he was misdiagnosed with malaria. For 2 weeks, their son suffered convulsions, and upon seeing one other physician, he was discovered to have issues along with his spinal wire after contracting meningitis.
“When he made three months, that is once I realised that my son was not rising as a standard baby. He had poor head management. He had a curved spinal wire. He was very floppy,” Edith recollects whereas sitting in her workplace. Its partitions are adorned with certificates of appreciation and advantage, and a portrait of President Yoweri Museveni hangs above the door.
As she appears to be like out a window onto a playground full of kids, Edith recollects how she and Richard struggled to get details about their son’s situation and had been ostracised by their family and friends who had been frightened of them and Derrick.
“We began coming into the hospital, out and in. House, hospital, house, hospital. And along with his scenario, particularly with convulsions, folks had been like, ‘He has bought epilepsy. He has demons.’ And that is the place I used to be rejected by the group,” she says.
“They had been like, ‘She gave beginning to a demon-possessed baby.’”
![Omalera, Soroti District, Uganda. Local Witch doctor Robert Apedu treats Noah Oyara,17. Noah has no use of his legs and also lives with hydrocephalus. Robert treated these conditions by rubbing a paste of water and plant matter into Noahs skin. While he is well known in the area as a witch doctor, he understands the negative connotation surrounding his profession so like many others he refers to himself as a 'traditional healer or herbalist'. [Christopher Hopkins/Al Jazeera]](https://www.aljazeera.com/wp-content/uploads/2025/05/HOP7760-1748336579.jpg?w=770)
Traditionally and till as we speak, training about disabilities has not been promoted by government-run faculties or native clinics, main many Ugandans to resort to conventional therapeutic. With no prognosis and feeling helpless, Edith succumbed to social stress and took her son to conventional healers.
“I attempted to take him to completely different witch medical doctors. They had been reducing him all around the physique, smearing him with their herbs, washing him with blood of the rooster, the blood of the goat. They might take us in at night time to bathe us with the blood of the rooster, however nonetheless, Derrick did not change,” she recollects. “It was simply worsening.”
However then an aged couple at her church inspired her to return to the hospital and supported her household. So Edith returned with Derrick to the hospital. After 12 months, he was recognized with everlasting incapacity. The extended lack of therapy for meningitis had led to extreme mind harm and cerebral palsy, leaving him nonverbal and unable to stroll or feed himself for the remainder of his life.